Sunday, March 6, 2016
Well another year has come and gone; my physical condition is more or less unchanged since my last post about a year ago. Visit the doctor every 6-8 weeks and that is about it. My MM markers (M-spike, kappa, and Igg) are about the same as they were a year ago; and I still take 10 mg of dex every four days. The dex, however, appears to be causing my blood glucose to rise and I started (in Feb.) to take medication for this. Nevertheless, still living a more or less normal life and traveling some.
Thursday, March 12, 2015
Well, I still doing well. Had to have surgery on my knee a few weeks ago; I am now in PT. Comes from jumping off my high school more than 50 years ago. Still taking 4mg of dex every 4 days; that is all. When knee recovers, I plan to go back to my exercise program; but probably will have to wait another month or so. No bone pain; however, I continue to tire easily. CBC blood counts are in normal range; so is creatine. Last M-spike was 1.3; Kappa is 4.20 mg/l; Igg is 1672 mg/dl. Not much change over the past year. Will continue on current course for the time being.
Thursday, March 20, 2014
March 30 marks my 5th anniversary of my official diagnosis of having MM (although I first went to doctor about 6 weeks earlier). My most recent MM markers (3/5/2014)are Kappa Light Chains @4.45, up from 3.77 on 1/21/2014; Igg 1744, down from 2014; and M-spike 1.4, down from 1.5. One marker up and two down. Blood pressure and blood work is normal. H/O does not seem concerned and I will stay off chemo but continue 10mg of dexamethasone every 4 days. On 2/12/2014, I had a full body scan set of x-rays (19 images); no new lytic lesions were seen and the old lesion on my right femur was no longer observable. Basically my bones are in better shape than they were 5 years ago prior to my 2-year treatment with Zometa (completed in July 2011). I have now been off chemo for 3 2/3 yrs. I continue to have some neuropathy in my hands and feet; but I am in no pain and can get about ok. So far; there are no issues of pain; no broken/fractured bones; I do tire easily and commonly take a nap in the afternoon.
Thursday, November 7, 2013
It's been a while since I have last posted and an update is in order. Last April, I began to have some stomach problems in that I would feel full after eating a small amount of food and eventually end up having to induce vomiting. This resulted in significant weight loss (about 30 pounds). After an endoscopy in June of 2013, I was diagnosed with a parasophogeal hernia where my stomach had slid up into my chest cavity. At this time, I stopped taking dexamethasone. Surgery was performed on July 16 and it took about 2 1/2 months to recover where I could eat normally and do everyday things. Dropping off the dex, however, caused my IGG, K Light chains, and M-spike to rise significantly. However in mid September, I went back on dex and these myeloma parameters began to decline. Here are the results: August 2, 2013: IGG = 2205; September 16,2013: IGG = 2188; October 30, 2013 = 1916; this is a 13% decline in 3 months. August 2, 2013: KLC = 3.68; September 16,2013: KLC = 4.35; October 30, 2013 = 3.52; this is a 19% decline since mid September. M-spike stayed constant at 1.5; however, gamma globulin (of which the M-spike is a part) decreased about 19% between August 2 and October 30; this would seem to suggest that the M-spike is starting to decline. I am back on dex at 10 mg/day every 4 days (i.e., dex day with no sleep and then 3 nights of sleep). I will see the O/H on December 17 and we will review the above parameters again to assess if the declines continue or start to rise. Until then, I will continue to take the dex every 4 days.
Sunday, August 25, 2013
Monday, July 1, 2013
Wednesday, April 24, 2013
Immediately after being diagnosed with MM in March of 2009, I started on program of 10 mg/wk of dex. This continued into the Fall of 2011, when I increased dosage to 10 mg/2 times a week. I had gone off chemo in the summer of 2010; and dex was the only medicine I was taking. The rationale for increasing the dex dosage was try and keep Igg, M-spike, and kappa light chains at relatively low levels. Today is dex day. It starts with 10 mg taken orally between 8-9 in the morning. I quickly begin to feel good and energetic; this lasts for about 5 hours at which time I feel somewhat sleepy and I take a nap. After the nap, I feel wide awake and I know I will be up all night in which I watch movies on TV or on the Internet. About 5 am, I start feeling sleepy again and sometimes I can fall asleep for 1-2 hours. I feel sleepy most of the day; sometimes I can nap, but mostly I don't. That evening I take a single Advil PM and I will fall asleep about 9:00 and sleep like a rock until the next morning. After 3 nights of good sleep, it is dex time again. Basically it is dex day, 3 nights of sleep, and then dex day again. Staying up all night is not ideal; however, I just try and make the best of it. At this point I'm used to taking the dex and just regard it as something I can do indefinitely. Overall taking dex is not a significant issue in my life.